Long Covid Data Dive Club: Using data to generate awareness about Long Covid

Created as an open grassroots initiative of people with Long Covid or ME-CFS in 2024, the Long Covid Data Dive Club (https://www.longcoviddatadive.org/) uses data to raise awareness about Long Covid and issues surrounding it.

Its first two projects are: Identifying funding to date for Long Covid in the UK and Germany, and mapping Covid "vaccination deserts" in the UK, areas where Covid vaccines are not available. The Dive Club hopes to engage with research funders and healthcare providers to make the case for more research funding and improve access to care for people with Long Covid.

This poster will present the Long Covid Data Dive Club initiative and its data collection and visualization projects.